CDH Family Reunion and Memorial Walk 2026

Description

OUR WHY

One of the hardest parts of the CDH journey is the isolation you experience. Meeting up with families who are walking this same path can be so life giving. We want to provide the space and place for you to do just that! Whether you are the parent/family/friend of a child who has survived CDH or a child who has passed from CDH please join us. We will have an afternoon of walking, talking, games and of course a cookout. We will spend the hours from 4pm-6pm connecting and then at 6:30pm we will begin lighting the luminaries and begin the moment of silence as we walk amongst the lighted names of those whose lives were unfairly cut short from this diagnosis. If you cannot attend the walk you can still purchase luminaries for your loved ones. We will be live-streaming the lighting ceremony so that everyone can participate.

Registration Update

In an effort to keep costs low and ensure every family has the opportunity to participate, we have reduced the registration fee for this year's event. T he $20 registration fee does not include an event t-shirt. However, you may choose to add a t-shirt during registration for an additional cost. This option allows families to attend at a more affordable price while still giving participants the opportunity to purchase a commemorative event shirt if they wish.

Thank you for helping us make this event accessible to as many families as possible. We can't wait to see you there!

LUMINARIES

If you would like to purchase a luminary for a loved one please complete the form below. Your luminary will be created and available the day of the event whether you are able to attend in person or not. If you would like to purchase more than one luminary then a form must be completed for each one. Multiple luminaries for the same child can be purchased! Once completed please visit the link on the confirmation page to purchase your luminaries. Note: If purchasing more than one luminary only one payment is required. Luminaries may be purchased here .

PRIZES

Largest Team Best Team Name (to be voted on through social media!) Most Money Raised

RACE INFO

Warrior Walk (In-Person)

Join us for an afternoon of fun, food and family. Meet at the track behind West Jessamine Middle School at 4pm where we will be grilling hotdogs and enjoying a chance to connect with other CDH families! The Warrior Walk will take place from 4-6:30pm, you can walk as much as you would like to reach the goals you have set for yourself. This walk is for ALL families of survivors and angels. We will begin lighting the luminaries at 6:30pm to be ready for sunset. At that time we will have a moment of silence to remember all of the warriors who were taken too soon.

What to bring?

Lawn Chairs - there are bleachers but you may want to be more comfy! Sun Screen Picnic Blankets

Packet Pick-Up

Packets will be available for pick-up the day of the race starting at 4pm.

Warrior Walk (Virtual)

While we would love to see everyone in person we understand not everyone is able to travel. This is why we are offering a virtual option that allows you to register, create a team and personal goals that are important to you! Participants are encouraged to run/walk an amount that is significant to them and their child's journey. One example would be, your child was on ECMO for 11 days so you are committed to walking 11 miles with your team. Another example is your child fought hard for 43 days and everyone on your team walks 43 minutes in their honor.

Donations

Donations are very much appreciated! All proceeds will go directly to our programming to help parents navigate life after CDH. This includes families seeking financial grants for a re-hospitalization, hospital transfer, extended NICU stay and in some cases the loss of their warrior.